Saturday, April 30, 2011 6:12 AM
Posted by Michelle on Mar 21st, 2011
I was diagnosed in August with a propylene glycol allergy that was the main culprit in my eczema. This took me four years to figure out and about six doctors. The lady I went to is in Houston at Baylor College of Medicine, the head of the Contact Dermititis Clinic. She did patch tests on me. Had had this done two years prior in Austin but to no avail. Part of it was the difference in methodology. My whole back was covered in tape when Dr. Katta did it. Anyway, had to use only Neutrogena soap, no fragrance laundry detergent, gloves at kitchen sink, Cerave cream, Vaseline around eyes where I had the eczema, and Free and Clear Shampoo (and no conditioner) for two months as test. Only used steroid ointment about 5 days out of 60. Starting to add in products slowly. Dr. told me I should avoid fragrance, and propylene glycol, and any di- or bi- propylene glycol. Wasn't aware of all the others that are related. OMG. Had a flare up last week and am scared to add things. Wonder if it was from not using gloves every single time I use the Palmolive in or some other spray on the counter the kitchen. Have been wondering about my mattress. Have ordered an organics wool mattress topper from Holy Lamb Organics. My mattress is a copy of a tempurpedic from Costco. I don't recommend it. It had terrible off-gassing for a while, and I should have returned it. Just ordered some foundation from Bare Minerals that my doctor recommended. Need good list of detergent, shampoo, conditioner, cream, dishwashing soap, make-up. I may go back and look at the products others have recommended. Oh, I found Repicillin online. I am going to try this on my Eczema. Have ordered the children's formula.
Posted by Becky on Oct 21st, 2009
WOW, thank you for this site. I was recently diagnosed with a severe propylene glycol allergy. I had an allergy patch test done because of severe eczema on my right hand that would not clear for over a year. After finding out about this allergy, I went to Whole Foods and purchased new deodorant, hand soap, bath wash and body lotion. I've been using the new products for less than a week and my hand looks and feels amazingly better! I chose to use Nature's Gate products(http://www.natures-gate.com) and I really like them. They are also inexpensive.
Posted by Sarah on Nov 10th, 2009
I am allergic to propylene glycol when it is ingested! It nearly instantly makes me throw up - an extremely difficult allergy to deal with! I am glad that someone made this site.
Posted by Alanna on Nov 10th, 2009
Hi! I don't have any diagnosed allergies. Whenever I wear cheap jewelry, I break out in a rash with little itchy bumps. My aunt suggested it's a nickel allergy. Until recently, I thought that's all I had. When I used Proactiv for acne, my eyes got very swollen, raw and itchy. I had no idea what that could be and neither did my GP. Since Proactiv, I've used a number of different products and hadn't had a problem until now. I'm using something called Acanya with a few other things. I am having the same reaction as I did with Proactiv. I am fed up with this reaction, so I compared ingredients with everything I am using now vs. what caused and what did not cause the reaction. The ingredient I found in common was, Propylene Glycol. Coincidence? Then I looked up any allergic reactions or testimonials and found this website! Seeing this person having a nickel allergy and a Propylene Glycol allergy with the same reactions, really gives me hope to stop this problem once and for all. When your doc can't even give you the answer, it's very discouraging. I'll get this specific ingredient checked out. Thank you so much!
Reply to Alana from admin: I have successfully used Differin (adapalene) for acne. The pharmacy reviewed the ingredients of all topical acne medications and this was the only one without PG. Make sure if you get a generic that this is still true.
Posted by Eric on Jan 06th, 2010
I have been diagnosed with a contact allergy to propylene glycol. Avoiding the use of OTC (and Rx)products (including steroids in a cream base)that contain it has fixed that. I recently used liquid cold medicine and within 36 hours got a mild body rash. I reviewed the ingredients of the cough syrup and found propylene glycol. I hope I am not jumping to a "rash" conclusion but I'm assuming the propylene glycol came out my pores and my skin reacted. I wonder if any other people with a propylene glycol allergy have had a similar experience.
Posted by Aubrey on Jan 29th, 2010
Eric, if you have been diagnosed with a contact allergy to PG.... and you are exhibiting symptoms after ingesting something with PG - I strongly suggest you stay away from it in any form.
I was initially diagnosed with a contact allergy to PG, discovered on my own it went much farther than that. It's an extreme wake-up call to discover this and I strongly suggest you take note and stay away from PG.
Posted by Ann on Feb 11th, 2010
I have been doing a ton of research since being diagnosed with a PG allergy two months ago. The problem is that are more synonyms for PG than you can possibly fathom. It can also be an unlisted ingredient within an ingredient (ie. biophytex which is used in anti-aging creams has PG in it). My doctor, who has written books on the subject, printed out a list of products that were "safe" from the American Contact Dermatitis Society Database. He said I could only use what was listed. I would suggest others having their dermatologists do the same thing. BTW, I also tested positive for a carvone allergy which is a fragrance/flavoring that they have only recently begun testing for. Caraway seeds, mint and spearmint.
Posted by Lisa on Mar 15th, 2010
I also get very sick when I eat something with propylene glycol. I react badly to topical applications as well. I had to stop dyeing my hair because I can't find a hair dye without glycols. I use only Basis soap (sensitive) and palm oil on my face (and loose mineral powder), and wash my hair with Aubrey Organics. I recently ate dried papaya that was unlabeled but definitely had propylene glycol. I do not think my reaction is allergic, but rather a sensitivity as I suffer from vulvodynia. I would like to ask SARAH what foods she avoids even though the label does not mention PG. Thanks in advance!
Posted by D on Apr 09th, 2010
Recently I developed a rash on my face. My eyelids are red and raw. I gave huge bags under my eyes. My skin is also very itchy, especially my arms and legs. I haven't been tested, but I have traced these issues to propylene glycol. I had been drinking flavored coffee for many months. PG is used to get the flavor into coffee. Of course, PG is everywhere and is hard to avoid. My face was extremely red and dry so I bought new moisturizer after reading labels for over an hour. Turns out I bought and used one with 'plant protein'. I wore it to bed and then woke up with something close to a chemical burn on my face. Two days later it's still very painful. Now I'm using pure coconut oil. This garbage should be banned from use.
Posted by tim on May 04th, 2010
my daughter had a car wreck in 1999 when she was 15 years old. she got brain injury .she spent 4 months in hospital. 2 years after the wreck she started to hear voices. she got unstable and uncontrollable and mean. she went in depression, and wouldn’t sleep for days. for no medication would work.8 year later we find out it was the pg in the shampoo and food. we find out it cuts down on oxygen to blood, and causes cancer. her voices has slowed down and she is sleeping at night. it wrecked her and our life we have a hard time finding shampoo. and anything that doesn't have it.
Posted by Elise on May 04th, 2010
When i was 6, i had a severe immune problem. The doctor said that i was highly allergic to something, but didn't know to what exactly. As i had strong allergic reaction to strawberries, but nothing with organic strawberries, the doc said i must be allergic to some pesticide, insect repellent used for strawberries. I had bad reaction to some soaps or lotions too. Then, thanks to the heavy treatment, i got better, and the allergy was really mild for years, some itching, but i never bothered to get tested. But last year, it came back. The exact same signs of immune problem and the allergy has gone wild. Turns out i was hugely exposed to PG at that time, without even knowing that i was allergic to it. They spray some anti bacterial stuff made from PG at the vet, a lot of dog shampoos and lotions contain PG (because it is a very strong flea/tick/lice repellent (it kills them). I used the Body Shop wild cherry body lotion, i felt like a human torch. I also had tremor (trembling), anxiety, swing of mood, muscle pain, breathing difficulty, burning sensations (including in my lungs), unusual hypoglycemia just after eating (i'm a non-insulin dependant diabetic), replacing words by others when speaking, without even noticing...and so on (long list).
My dog began to have allergic reaction to his shampoo and lotion (brown skin, itchy, red dots), so i stopped using anything with PG. He was better...so did i ! I did lots of research, and stopped eating and using anything with PG (including oils). I'm kind of feeling better. But now my dog is gone, at only one year old, i wonder if it would be possible that PG was in the intravenous treatment that he reacted violently to, thought it was not written on it ? The vet said PG might have worsen his condition. I saw that you talk about local anesthetic, that only one does not contain PG, but i asked a dentist here, he said it was not in the ingredients of any of them ! (So thanks, you may just have saved me a lot of trouble !). I also know it's not listed in the vitamin's ingredient i was taking, but according to a medical site, it contains a huge amount of it ! It's so frightening ! Why isn't it written ?
I don't know if it is relevant or not, but i do fear for my life sometimes... (i am 26)
(English is not my mother tongue, sorry if there are faults)
Posted by kathy on May 20th, 2010
I have been using topical and prescription creams(steroids, yeast etc.) for the vulva for months for possible yeast etc...as doctor advised. Each time it gets worse and I notice all the creams have PC...can anyone tell me the symptoms and reactions to this area...maybe I am attempting a commonality of my own but they ALL have it and make my area worse! thanks
Posted by Becky on Jun 25th, 2010
Thanks for all your postings. Two related items:
1. Vet's office - spent 20 minutes at the vet's office with my dog about 3 weeks ago. There was a very strong odor from their disinfectant spray. The next morning, I was covered in eczema. Elise, your posting on the PG spray in pet disinfectant confirms my suspicion that the chemicals in the vet's office triggered my reaction. Let's all be weary of strong chemical components in the air.
2. PPG in toothpaste - my last 2 years of dental exams indicated gum disease, and I floss daily. Sure enough, after my glycol allergy diagnosis and switch to Tom's of Maine toothpaste (any flavor) as recommended by my immunologist, my dentist was shocked at the difference in my gums since my last visit. He affirmed that it was most likely my allergy to glycol.
Posted by Honey on Jul 26th, 2010
After seeing a dermatologist for over six months for a rash between my upper lip, running up into my nostril, he found that I was allergic to propylene glycol. Seems as if every cream He tried contained PG. He tried antibacterial & steroid creams, He also treated me with oral antibiotics& oral antifungal meds, during which the entire time I was using some type of cream containing PG in combo with the oral meds. Needless to say I still have this horrible looking rash, bright red dry cracked skin with small white pimples or bumps, My DR. wants me to try a "precancerous gel" for three months even though he has said more than a few times that my rash is atypical. the gel contains some of the "cousins" of PG! At this point I aim afraid to put water on my face. HELP has anyone had a similar experience?
Posted by Laura on Jan 11th, 2011
My life has just become a nightmare. I own a commercial cleaning service and have been having problems with severe angioedema. Some nights I am in such pain after working I can hardly move. I quit smoking two months ago and went to the e-cigs, that was when I realized I am allergic to propylene glycol. I ended up in the ER with anaphylaxis. Every chemical we use to clean with contains it, every health and beauty product contains it, many things I eat, clothes that I wear, laundry detergent I use. I realized this morning that my medicine isn't helping because it also has it in it! Now what? How do I get this stuff out of my life? How do I function without being a toxic waste dump for this stuff? The minute I go to work, parts of my body start swelling and hurting so bad I can hardly move. How am I to survive when it is so built up in my system, that one trigger debilitates me?
Posted by PGirritated on Jan 11th, 2011
Kathy, I have the same vulva problem. My doctor concluded it was some sort of allergy - fragrance, PG, other? If there is no infection, chances are it's a chemical allergy. The hard part is finding out which one. He put me on steroid creams/gels/etc. for months too, which haven't helped, as they call contain PG! Good luck!
Posted by Sue on Jan 11th, 2011
Has anyone had "allergies that won't go away"? I live in the Gulf of Mexico region and am miserable since the BP Oil Spill in April 2010. The Corexit they sprayed to "hide the oil" from the surface contains large amounts of PG which becomes a volatile organic compound (VOC) over 62 degrees F. I am looking for others who have had unrelenting respiratory, sinus congestion, eye swelling/itching/pain, cough and misery. Please contact me if you are having the PG problem ongoing. Perhaps it is PG that is taking the lives of birds and fish at this time!
Posted by Linda on Jan 11th, 2011
Longtime sufferer of Excema of the hand and recently skin patch tested. Hairdresser by trade and now sensitive to shampoo, conditioners, soaps, creams and body lotions that contain propylene glycol, anything coconut oil derived, formaldehyde etc. I am at a complete loss and struggling to find a shampoo that I can use myself. Any suggestions?
Thanks so much!
Posted by Sofie on Jan 11th, 2011
I am sensitive to a slew of ingredients the big one being Propylene Glycol. A longtime sufferer of excema of the hand and a full time stylist, I am thrilled to find this site. I've eliminated many products at home and at work containing everything from PG and formaldehyde, anything made with Coconut/palm oil and many different preservatives. It's been an eye-opening experience. The dermatologist who set the skin patch study realized that the current prescription that I have been using for many years was a huge part of the problem as PG was in the base ingredients. For years I wondered why my hands would clear then flare up, then clear again only to flare up. Fortunately I am happy to report that within 9 days of eliminating and using propylene free products including a new PG free Steroid ointment, My hands are clear with no swelling, itching and no pain. Located in the NorthEast where the winters can be frigid at times and as a hairdresser..moisturizer is a MUST! But in reading all the labels to many different lotions including Aveeno which I've used faithfully, they all contain one form or another derivative of PG and/or formaldehyde. Currently using Cerave ( which can be found at your local CVS and Walgreens) and have found that I really like how my hands feel and am looking forward to shaking my fist in the face of a upcoming cold New England winter knowing I now have the upper hand.
Posted by Judy on Mar 21st, 2011
In December 2010, I started having bladder inflammation and abdominal cramps, and one consistent cause was an estrogen cream, used vaginally, and also several feminine lubricants. The ingredients I suspect are propylene glycol, polyethylene glycol and pentylene glycol. So I stopped all these products and still have milder flare-ups at times. Now I've noticed that a hair conditioner I sometimes use in the shower has propylene glycol. And, yikes, also my face cream and hand cream. I've been on a really strict interstitial cystitis diet, fearing and suspecting all kinds of foods, but still the symptoms, though milder without the vaginal products, haven't gone away. I'll keep you posted as I switch to safe products. I have some hope I may not have true IC after all.
Posted by Melody on Jan 11th, 2011
i have had a propylene glycol allergy for years and find it to be in medication( otc and prescribed) i always ask the doctor to look at the inactive ingredients in meds i get severe contact dermatitis on my hands from this. its in salad dressings, coffee, lotions, i was being treated for 2 years for contact dermatitis and found out the medicine was what i was allergic too!
Posted by Jill on Mar 21st, 2011
I found this site a couple years ago but not much was posted. I just checked again and was pleased to find more on it. I had hand eczema in my early 20's and was given rx cream that cleared up then developed a secondary infection. My dr gave me a skin patch test and I am allergic to pg and formaldehyde. At the time my husband and I were able to figure out that I had to avoid artificial flavoring in food and most everything else that contained pg or formaldehyde. That was 25+ years ago. Two years ago, I search online to find out if there were other chemical names that had similar effect to the two I was allergic to other than the ones I knew about 25 years ago and discovered a whole list of new names I was not aware of. I also discovered they have expanded the usage for pg. Since this discovery I have made more dietary changes as well as product changes. I was having problems with hand eczema again and figured out it was the antibacterial soap I was using and am hand eczema free again for two years now! I now only use non-scented dove bar soap and wear gloves when doing dishes. I use Joico daily care balancing Shampoo for normal hair and daily care conditioner (revitalisant). I usually just wear mascara and lipstick but just found out the mascara I used for 35 years changed their formula on me and have both pg and quarternium-15 which produces formaldehyde reactions. No wonder my eyes were having eczema symptoms recently! 3 or 4 years ago, right before I was to have my hair dyed for the first time, my older sister said she developed an allergic reaction to the hair dye and thought she was allergic to a chemical in the dye but wasn't sure which one. I checked with my hair stylist and asked to see the ingredients in the hair dye and discovered pg! Needless to say I cancelled that appointment and don't color my hair. I am just glad to know there are others besides myself that have trouble with pg and formaldehyde.
Posted by pat on Jan 11th, 2011
the eucerin I saw did have PEG in it and it was the original. Off to search some more because I saw nothing without either cones or PEG. I sell non-toxic skin care so the ingredients in that look good. Maybe someone could tell me if I am missing something that could be a culprit - www.avaandersonnontoxic.com/patlehr. Unfortunately, the line is limited. I hope that I am not allergic to something in it! I have very very dry skin and cannot find a body lotion. I am using Impruv but don't know if that is causing my problems. I also am wondering - all of my reactions seem to be delayed - is any allergy testing (other than IgG bloodwork) going to be worth it or just put money in an allergist's pocket. My issues all started after surgery. had a reaction (minor horrid runny nose) to propofal and not sure if this angio edema I get is related to that or not. Very frustrating! Off to look at my makeup though nothing really new there except BE mascara - and this started before that.
Posted by Trina on Jan 11th, 2011
Alright, so we are getting hit by this ingredient from so many different products how are we to eliminate contact.
I had a pretty bad reaction to PG while treating a poison ivy reaction. My rash developed a rash caused by the PG in Caladryl!
I'm having a hard time finding color safe shampoos, hair dye and mascara without PG. I am disgusted to find it in food as well.
In addition to this I have celiac disease and my son is sensitive to PG and is lactose intolerant. Needless to say, shopping requires constant label reading!
Posted by Kim on Jan 11th, 2011
I was diagnosed with a PG allergy in April, after several doctors and many months of misery, as I am sure you all can relate to. The doc who finally diagnosed me was unhelpful...I basically got a "good luck" speech from her. No real advice, no meds,(except 2 creams and a shampoo that HAD PG IN IT!!), no plan of action. I have moved, and am trying to get a referral for a new doc, and am having an ugly break-out now. Anyone found anything to help control this? Any creams that help? Any meds to control it? I was doing okay for awhile after getting rid of everything I owned and starting over, but a few weeks ago the rash came back. The last time it was this bad, I ended up getting a staph infection, so I am worried about that again.
Any advice would be appreciated!